Endometriosis affects an estimated 1 in 10 people assigned female at birth, yet diagnosis is notoriously slow — often taking 7 to 10 years from the first symptoms.

The condition occurs when tissue similar to the uterine lining grows outside the uterus, causing pain, heavy periods, and sometimes infertility. Despite how common it is, endometriosis is frequently overlooked or misdiagnosed.

Common reasons for diagnostic delays

1. Symptoms can be mistaken for “normal” period pain

Severe cramps, heavy bleeding, or fatigue are often dismissed as just part of having a period. Many people are told to “tough it out,” even when symptoms are debilitating.

2. Symptoms overlap with other conditions

Endometriosis can mimic or overlap with conditions like irritable bowel syndrome (IBS), ovarian cysts, or pelvic inflammatory disease. This makes it harder for doctors to pinpoint the cause right away.

3. Lack of awareness and training

Some healthcare providers still underestimate how painful endometriosis can be, or assume it’s rare. This can lead to patients not being referred to specialists quickly.

4. No simple test

Unlike some conditions, there isn’t a single blood test or scan that can definitively diagnose endometriosis. Imaging may suggest it, but the only way to confirm is often through a laparoscopy (a minor surgical procedure).

5. Cultural stigma around periods

Talking about periods and pelvic pain can still feel taboo. This can make people delay seeking care or downplay their symptoms when they do see a doctor.

The emotional impact of waiting for answers

Years of unexplained pain can take a huge toll. Many people with undiagnosed endometriosis report:

• Frustration and hopelessness
  
• Anxiety about being believed by doctors
  
• Missed school, work, or social activities
  
• Strained relationships due to ongoing pain

This emotional burden is a key part of why awareness and faster diagnosis matter.

How to advocate for yourself

If you suspect you might have endometriosis, here are some steps that can help:

• Track your symptoms: Keep a diary of pain levels, cycle changes, and triggers.
  
• Seek a second opinion: If your symptoms are dismissed, consider seeing a gynecologist who specializes in endometriosis.
  
• Ask about imaging: Ultrasound or MRI may reveal signs, though not always definitive.
  
• Discuss laparoscopy: It’s still considered the gold standard for diagnosis.
  
• Bring support: Having someone with you at appointments can help you feel validated and heard.

The bottom line

Endometriosis is common, but diagnosis often takes years because symptoms are misunderstood, overlap with other conditions, and lack a clear diagnostic test.

If you’re experiencing severe period pain or other symptoms that affect your daily life, trust your body and keep pushing for answers. The sooner you get a diagnosis, the sooner you can access treatment and support.

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